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Another Perspective

August, 2016 Health Update

A quick update on my chronic lymphocytic leukemia. I am in a trial study that is looking at how two drugs work together on the cancer cells. One I take by infusion: Gazyva. I have experience with this drug, having had it in my last trial study. I am again having a positive response  Read More 
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A brief Update on my Health

I haven’t been blogging because I was putting all of my energy into Hangtown II. Then about March/April my CLL fired up. I was hoping for a minimum of two years of “normal” life, but got just one. Fatigue, night sweats, weight loss increased. My blood lab numbers reflected the renewed activity  Read More 
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Good News

Hello, good friends. It’s been a while, hasn’t it? Let me briefly update you on what’s been going on.

I am finishing with my trial study treatments and they’ve gone exceedingly well. The only side effect I’ve experienced has been weight gain. I’ve put on 28 of the original 40  Read More 
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Hope...Frustration...Hope

Since my last blog I’ve been preoccupied with treating my CLL and writing Hangtown, an historical novel.

In March I began taking Ibrutinib, the current “wonder” drug for CLL. Three pills a day and the disease is contained and managed. The cost for the first month alone was just over $2700, with additional months  Read More 
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Watch and Wait Ending

Over the past three-and-a-half months I have been in a watch and wait phase. This is a period when treatment is not indicated but the progression of the disease is closely monitored. For a couple of those months the leukemia has been progressing negatively, slowly and steadily, while the preferred treatment wasn’t F. Read More 
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Watch and Wait

I saw my oncologist yesterday. He said I am finished with the Chlorambucil. It has accomplished what it can. The long-term risk of damaging my body outweighs the short-term benefits continuing on the drug might provide. I am again in a “watch and wait” period.

It is unclear at this moment if my body  Read More 
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Time Out: Chlorambucil

The only decision made on December 3rd was for me to stop taking Chlorambucil for a while. All indications from the blood tests are that it is working at bringing my CLL under control. However, my red blood cells are also decreasing. My hematologist/oncologist said it is unclear whether Chlorambucil is responsible for  Read More 
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Initiation by Fire

Throughout our lives each of us experiences a series of initiations. These are rites of passage whereby we move from one level of awareness and understanding into a new, more expansive and profound one. The church calls these sacraments. Often these initiations involve pain, suffering, an enduring of fear, humiliation and loss of social  Read More 
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That Burning Sensation

After last Tuesday’s dose of Chlorambucil, I had an intense burning sensation fill me. It felt like I had a fever: violent chills, shaking and a headache. I was miserable for about 4 hours until these symptoms went away.

This was a nasty enough experience that doing it again in two weeks left me  Read More 
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Better Living through Chemistry

I want to begin by thanking my readers for their thoughts, prayers and good wishes. They are very much appreciated. Thank you.

The computer for the clinical trial study for Ibrutinib randomly assigned me to the older drug, Chlorambucil. While disappointing this drug, that was approved by the FDA for the treatment of  Read More 
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